Community
and Resources

The advocacy community provides important information and resources for patients living with rare diseases. We’ve partnered with many to learn from them and bring the best knowledge together.

Resources for Patients

Action Duchenne Logo

Charley's Fund Logo

cCure Duchenne Logo

CureLGMD2i Logo

Parent Project Onlus Logo

Duchenne UK Logo

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Jesse's Journey Logo

Jett Foundation Logo

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PPMD Logo

The Speak Foundation Logo

C-TAP Logo

CPATH DRSC Logo

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Treat NMD Logo

EveryLife Foundation Logo

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NORD Logo