Community
and Resources
EDGEWISE COMMUNITY NEWSLETTER
Check out the latest edition of our Community Newsletter, which is geared for members of the Duchenne, Becker and Limb-girdle muscular dystrophy communities.
ATTENTION BECKER COMMUNITY!
Watch our recent Becker-specific webinar with PPMD where we describe emerging Becker natural history data and disease progression and discuss our novel approach to protect muscle in Becker muscular dystrophy.
Check out our new disease education website aimed at raising awareness and education on Becker muscular dystrophy for individuals with Becker and their caregivers.
Visit BeckerMuscularDystrophy.com
EXPLORE OUR PRESENTATIONS & EVENTS
Resources for Patients
The advocacy community provides important information and resources for patients living with rare diseases. We’ve partnered with many to learn from them and bring the best knowledge together
Duchenne, Becker, Limb-Girdle and McArdle Organizations
Neuromuscular Organizations and Consortia
Rare Disease Organizations
