Support for Becker
Committed to people and their families living with Becker
What is Becker?
Becker muscular dystrophy is a genetic disorder that causes progressive muscle loss and weakness. Loss of muscle and subsequent functional decline may begin at any age and may affect your ability to perform everyday activities like walking or climbing stairs. Preserving muscle function is an important part of managing Becker muscular dystrophy.
You can help contribute to Becker research
As scientists advance our knowledge of Becker and potential treatments, you can help by considering joining a clinical trial. We encourage you to talk to your doctor about the risks and benefits of participating.
Watch our
Muscle Town video
Discover how muscles work (and why they sometimes don’t in Becker and Duchenne muscular dystrophy) their role in our bodies, the proteins involved, and more.
Resources
Becker Education and Engagement Day (BEED)
An initiative developed by Becker advocates, clinical sites, advocacy groups, and researchers to unite the Becker community.
Becker Disease Website
An online resource developed by Edgewise in collaboration with the Becker community
TREAT-NMD
A global network of experts in the neuromuscular field. Everyone in the network helps the organization work toward the mission to accelerate the development of effective
treatments; and establish the best in diagnosis and care for people worldwide.
Muscular Dystrophy Association (MDA)
Empowers people living with neuromuscular diseases and looks to accelerate research, advance care, and advocate for the support of families living with muscular dystrophy, ALS, and related neuromuscular diseases.
Parent Project Muscular Dystrophy (PPMD)
Fights every single battle necessary to end Duchenne. The organization also supports people and families living with Becker.
Grand Canyon:
A Becker Clinical Study
GRAND CANYON is a pivotal cohort within the CANYON trial investigating the safety and effectiveness of sevasemten in adults with Becker. There are advantages and disadvantages to participating in a clinical trial. Talk to your doctor or explore the links below to learn more about whether GRAND CANYON is right for you.
How do others live with becker?
Meet Bryan.
Husband. Author. Drummer.
Living with Becker.
What is Sevasemten?
Sevasemten is an orally administered first-in-class fast skeletal myosin inhibitor designed to preserve and protect unstable muscle against contraction-induced injury in individuals living with rare skeletal muscle disorders, including Becker and Duchenne. Clinical trials for sevasemten are ongoing.
Sevasemten is an investigational therapy that has not been approved for use in Becker muscular dystrophy or Duchenne muscular dystrophy by any regulatory agency, as its safety and effectiveness have not been established for the treatment of these diseases.
Subscribe to our
community newsletter
Sign up to receive educational updates from Edgewise Therapeutics.
