Patients & Families
Patients and families are at the core of our mission
As we work towards developing new medicines, we seek to keep the needs, experiences, and hopes of individuals with serious cardiovascular diseases and their families front and center.
Our Guiding Principles
Start with patients. Consider the voice of the patient at every step of the way.
Create and follow the science to lead us to novel therapies.
Work with uncompromising standards and integrity
Communicate honestly, openly and compliantly
Meet the challenge with urgency
Our goal is to understand the challenges individuals living with the diseases we work in, their families and their caregivers face every day to help us develop meaningful treatments. By doing this we can better serve the communities we serve and improve all aspects of our work to develop impactful and potentially life-changing treatments.
Support for Hypertrophic Cardiomyopathy (HCM)
What is HCM?
HCM is the most prevalent of the inherited cardiomyopathies. It is a lifelong, often progressive condition that is frequently underdiagnosed. People with HCM may have a higher risk of heart failure, stroke, and atrial fibrillation. Commonly experienced symptoms include breathlessness, irregular heartbeats, chest pain, tiredness, dizziness, or even fainting. These symptoms are caused by excessive contraction and thickening (hypertrophy) of the left ventricular wall of the heart. Over time, the thickened muscle becomes stiff, making it difficult for the heart to relax and fill with blood. This is known as “diastolic dysfunction.”
If you or a loved one have been diagnosed with cardiovascular disease and are experiencing any of the symptoms described above, talk to your doctor about genetic testing for HCM.
Medicines are available for HCM, but people taking may experience limited efficacy, undesirable safety concerns, inconvenient dosing, side effects, and the need for frequent monitoring. While progress has been made for the HCM community, new therapeutic approaches are needed.
How do others live with HCM?
Meet Lindsay.
Patient Advocate. Author. Volunteer.
Living with HCM.
Resources
Cardiomyopathy UK
Provides support, trusted information and a welcoming community for people affected by cardiomyopathy, while campaigning for better access to care, raising awareness, and helping shape research.
Genetic Cardiomyopathy Awareness Consortium
Raises awareness about the need for genetic testing for cardiomyopathy patients and their family members.
HCM Patient Foundation
Unites and supports individuals with HCM and their families across Europe.
HeartCharged
Ends preventable deaths from sudden cardiac arrest and undiagnosed heart conditions and provides patient-to-patient support.
Hypertrophic Cardiomyopathy Association (HCMA)
Provides support, advocacy, and education to patients, families, the medical community, and the public about hypertrophic cardiomyopathy while supporting research and fostering the development of treatments.
Mended Hearts
Inspires hope and improves the quality of life of cardiovascular disease patients and their families through ongoing peer-to-peer support, education, and advocacy.
Mended Hearts Europe
Fosters hope and enhances the lives of cardiovascular disease patients of all ages, their families, and caregivers across Europe. Through ongoing peer-to-peer support, patient education, and advocacy, their mission is to build a community characterized by resilience, care, and collective strength in overcoming challenges.
Women Heart
Improves the lives of women with or at risk for heart disease while fighting for equity in heart health.
Servier Acquires Our Muscular Dystrophy Program
Following the close of our transaction with Servier, Edgewise’s muscular dystrophy business, including sevasemten, is now part of Servier. Servier’s global capabilities and commitment to neuromuscular diseases position it to advance sevasemten and continue supporting the patient and advocacy communities we have been privileged to serve.
Edgewise is now focused exclusively on advancing high-impact therapies for people living with serious cardiovascular diseases.
